Saturday, July 26, 2014

Selective Dorsal Rhizotomy

I last posted in October, wow. Guess having 2 boys keeps you super busy. Luke is a 1 years old now. He started walking on July 4th and July 14th he started climbing. Abe is 5 years old now. He starts kindergarten in September, is using a power wheelchair for his means of mobility and can pedal a bike.  He will be having surgery, selective dorsal rhizotomy this summer. The rhizotomy will help decrease abnormal muscle tone. His muscles are so tight from the CP that his hips are pulling out of socket and it is difficult for him to stand and walk. Abe is able to pull himself to a stand and take steps while holding onto little kid shopping carts or our wheelchair ramp. We ask for prayer as this will be our first time dealing with caring for 2 children during a major surgery.Here is a link about the information: a The follow up PT is critical so 6 months to 1 year will be spent commuting to and from PT 3 x a week. We recently transitioned his therapy to CTU in Puyullup to better accommodate his post operative PT needs and space for his power wheelchair. We are not sure if I can continue MOPS, women's bible study and how OT and ST will be work out for Abe.Glenn retires from the Navy in October. He started working at Boeing this past week. We are still unsure of his schedule, either days or nights. I will update this as I can to keep everyone posted on how Abe does after surgery.

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