Riding a trike

Today was another busy day. Slowly adapting to life in the hospital setting. This is Abe's 8th admission since he was born but our first one with another child in tow. Luke is enjoying the playroom. Since we did not have respite today they gave us a volunteer to play with Luke in the playroom so I could attend Abe's PT,OT sessions.  Abe had tons of PT, OT, recreational therapy. He enjoyed drawing buses in the playroom and taking the stander down to the playroom. Both kids are currently asleep. I am waiting for Luke to wake up so him and I can leave so I can eat dinner. It's getting so late I might just wake up him now and hope he goes back to sleep before 1am. Yesterday was rough I had nausea, vomiting and severe pain my back which I attribute to a kidney stone. I almost went to ER or urgent care but the pain subsided. The pediatricians were so nice and supportive during the kidney stone pain I endured but most pediatricians are very caring doctors to begin with. I have a doctor's appointment this week but I really don't want to travel the distance and leave Abe in a hospital alone just to be told yes you have a kidney stone, CT will call to schedule you,drink plenty of water, ect. I am feeling better today but I was in pain in the morning. I sure hope I can pass the stone without medical intervention but I know I need to be strong to care for both boys. Abe got to pedal a trike around the unit and he looked so happy. The PT was impressed by his skill. He was taught early by PT, OT and private OT at school to pedal a trike. His feet were casted again to help stretch his tendons in the back of his ankles to keep his feet in a neural position, he has a tendency to toe point due to the CP. I have enjoyed all the Starbucks the hospital has.  Abe is getting stronger every day and shows a desire to move. Tuesday a young visitor, 6 year old boy and his mom came to visit. The boys were cracking up and Abe told him that I "sugared him up" which I did with the root beer float I ordered for him. The children's pastor of Christ the Rock, Pastor Dave, came to visit today and brought some chocolate, lemon to add to water to help my kidney stone. He prayed for Abe and our family. A mom I met at a baby wearing group gave him a tula baby carrier I could borrow since Luke is getting too big for the Ergo. I carried Abe in the Ergo for a long time, till age 3 but he was much skinnier than Luke. We appreciate all the support we have, for friends and respite care. Not sure what I will do when we lose respite care in October. I will update as I can. My typing is keeping Abe awake.

Taking a break

Respite is here today so Glenn and I are going to take a break. I do wonder how someone else can care for both boys in this situation. I don't want Luke running around in the hospital room because too much bio-hazards to get into. I know my boy and he will go straight for the bin labeled bio-hazard or the trash and power cords.  Luke is extremely active boy so being stuck in the Ergo, stroller and pack n play has not been much fun for him. He does enjoy the playroom especially the push toys but the play room closes at 4pm Friday-Sundays. On other days I had a friend or respite provider take Luke to the playroom or stay with Abe. This will be the first time I leave both boys under the care of the respite provider and the Abe under the care of the nurses. Abe has mobility restrictions, no walking, crawling or standing unless in PT but he did enjoy riding in the little red car at the playroom. Hopefully soon enough he will be allowed to crawl again because on Friday he really wanted to get down and crawl around next  to Luke. Abe does have some pain but is not always developmentally able to say that he is in pain but will start crying and not tolerate being able to move around. Eventually his pain will subside I know after my surgeries my pain eventually went away but  none of my surgeries were as major and never back surgery so I really have no idea. I do know that children heal incredibly fast and adapt much better than adults do. Monday Abe has a full schedule of PT and OT and respite is coming again so hopefully mommy can get a break. I am hoping to get to bed before midnight since the schedule is so packed but that is exactly what is necessary for full benefits after a SDR. In case you did not check it out yet go to Seattle Children's Website and search "SDR", a video series about the procedure is on their. Dr. Browd in the video placed Abe's VP shunt when he was a baby and Dr. Apkon is his outpatient rehabilitation doctor. She is currently not doing inpatient but said we request her if we wanted to. I appreciate her wiliness to accept an inpatient assignment right now however doctor's need a break too. I am not a doctor but I can imagine having inpatient duty is more time consuming and you work more hours than outpatient.  

Post op day 5

Abe is doing amazing. He made his first trip outside and downstairs yesterday. We made it to the playroom only 20 minutes before they closed but it was better than nothing. I let Luke out of the Ergo and Abe saw Luke on the ground playing so naturally Abe wanted to play to. When I told him I was not sure that he could get down right now due to his surgery and his casts on his feet he became very upset and wanted to leave. They offered him a truck but he said no and  began to feel happy again when paper was offered to him. Luke really needed to run around. Since I was so frazzled from caring for both boys in a non typical environment I completely forgot to prepare Abe for the changes that recently occurred with his mobility. It was a super busy Friday and around 245pm I finally got to get something to eat. I will plan to bring lunch and dinner now especially if no respite care is available that day. The social worker did tell me that a nursing mom meal would be provided for 3 days but unfortunately it's against hospital policy because the sibling is the nursing baby however no one bothered to tell me this until the last minute.  Glenn does have a job so we do receive a pay check but the biggest obstacle was actually getting to go there to get food. Luke enjoyed playing in the water foundation and Abe thought it was hilarious. It was all fun and games in the water until another parent mentioned that her baby playing right next to Luke in the water was just seen in the ER for a stomach virus and diarrhea. Most of  you know I am a nurse and mom of a former preemie (Abe) so just imagine how quickly I got him changed and cleaned up. Another kid from Bremerton area had surgery too so his mother stayed with Abe while I took Luke upstairs. Security approached me as I was trying to get Luke upstairs because it probably didn't look right since I was holding him at distance and trying to get his wet clothes off of him.  Good to know they do a great job at keeping kids safe here. I got a Starbucks treat, a peach green tea lemonade, super good by the way, and Abe a cookie. Getting outside and getting Starbucks seemed to make the busy stressful day a little better. Abe got new super boots (casts) yesterday. He did pretty good but the sound of the saw was upsetting to him and Luke got fussy since I would not let him play in there. The purpose of the casting is to stretch the Achilles tendon so he hopefully down the road he won't need tendon release surgery. Abe points his toes significantly so the plan with serial casting, (every 3 days for 2 weeks) is to help his feet to be a more neutral position. He started PT and OT. He is tolerating being in a wheelchair and his therapy without narcotic pain medications however the last two evenings I have noticed he does not want to move so has required Tylenol. He has a huge oral aversion to oral medications so the first few days were very difficult but seems to except them from nurses. The plan is to wean him off Baclofen but so far I have not heard when this will occur. I have already noticed less tightness in his legs but his right arm and elbow are tight. Today rather than rushing to get here Luke and I slept in, did some laundry and took a break. I sure hope his shoes dry out soon because they got soaking wet. A dog named "Abe" came to visit Abe today and left his picture. Abe is enjoying the cards people made for him.  This week was incredibly busy and stressful but one week is almost over. Thank you friends for all the support this week, staying with me the day of surgery since Glenn was working, coming to visit us, bringing food and small portion freezer meals that are portable and watching Luke. The best advise I can give for any family that might go through a planned surgery for their child or family member: pack some lunch for yourself the day of surgery especially if pregnant or nursing, we had a 4 hour delay and I was starving, bring another adult (preferably a parent) with you if a child having surgery so you can step outside the room to eat since the patient can't eat. They did not want me to leave the pre surgery area even though I had a friend in the room with Abe because she can't make medical decisions for him.Make freezer meals in small dispoble containers that can be microwaved (I made large portion in seal a meal bag, not so handy in the situation we are in right now), arrange child care for you other children, pack non perishable snacks, bring a water bottle to refill and bring your own pillow. I will keep you updated on his progress. Sundays is a no therapy day so hopefully Abe can enjoy some time driving his power wheelchair (I got it fixed so it goes all the way to ground now Thursday and it tore me up to leave Abe but respite stayed with him that day and he did amazing having mommy gone). I felt like a terrible mother leaving him but I had to get the chair taken of and the reason I was gone was for something for him. The lift for the power wheelchair has been shipped, just waiting to get it installed. I can't wait to see him be able to stand and crawl again and potentially walk. I picked up his tricycle this past week. I can't wait to see him get strong enough to pedal again.

Laying flat

Abe had his surgery, in case you don't remember, selective dorsal rhizotomy. We got here early on Monday morning and he was finally taken into surgery around 2pm and was admitted to the surgical unit around 8pm.So thankful I had assistance because Abe could not eat before surgery. I had respite provider take Luke to blow off some energy and eat and a friend sat with Abe so I could go into the hallway to quickly eat a snack. Some of you have been breastfeeding mom and and well if you miss a meal you are super hungry. The anesthesiologist let Abe look at his phone and watch a video about escalators with balls coming down to distract him and make the transition to the OR better for him. Only at a Children's hospital, lol. No disrespect to anesthesiologists but most choose that specialty because less people skills are needed because your patient is heavily medicated and therefore does not talk back. I was impressed that he was considerate and did that for Abe. Abe didn't even cry leaving the room but momma did because my baby was heading to have major surgery, irreversible no going back, hope he can still stand, walk with assistance, ride a bike, potty train and all the functions he currently can do kind of surgery.  The friend stayed with me until Glenn arrived with dinner around 9pm. This surgery requires 72 hours of  bed rest, laying flat only only being rolled side to side in order to spinal fluid leak. He is much more talkative, watching You Tube videos, looking at books and wondering what Luke is doing. He wants to know everyone's name and what level they parked on. He took the paper air plane with him to the OR and his Tiny Super Heroes cape. He has been holding onto a card the same boy that made the paper airplane since his first night. The first day he was very sensitive to noise and light and mostly just slept. He is on a morphine drip to control pain, IV fluids and received a few days of antibiotics to prevent infection. I heard him coughing  then he threw up Tuesday morning and a light bulb went off in my head even with hardly any sleep; Casts were put on both feet to stretch and lengthen tendons. The abnormal muscle tone causes tight tendons. The PT that saw him pre-operatively a few weeks ago already noticed that his muscles and range of motion has improved. He mostly slept all day the 2nd day and really was not himself. Today when Luke and I arrived he instantly perked up and has been awake all day. He has had difficulties wanting to take medication even his normal medications. We are working on this. I sure hope it becomes less of an issue because he will need pain management medications and his muscle relaxer. The plan is to wean him off the muscle relaxer, bacolfen by the time he goes home. This will be great because some of the side effects are constipation and decreased alertness. An adult would not be able to take the muscle relaxer and drive. The nurses and staff have been very helpful and making sure the family is taken care of. We were approved for additional respite and it is a huge blessing. Some of you know our family has been thru a lot of inpatient stays, this is admission number 8. The other 7 were during Abe's first 19 months of life, some while Glenn is around and 3 while he was deployed. All I have to say is wow I was extremely lucky back then that I only had one kid to care for. Caring for 2 kids, especially an active breastfeeding 1 year old is very exhausting. He gets so bored in Abe's room so we have been taking him to play room so he can burn off energy. He just runs back in forth, back in forth pushing toys around. He gets sweaty he is running so fast. Then he takes a nap which is just what his momma needs. His regular respite provider is coming tomorrow for 10 hours and Murphy's Law (mom wants to sleep) Olympic Pharmacy in Gig Harbor has the new arm rests for the power wheelchair.  However this is a blessing that the part come in today, they have an opening tomorrow and I had already arranged respite. It will be good to get this taken care of before Abe needs it for rehab and honestly much easier to get it taken care of without 2 kids in tow. The automatic wheelchair lift has been shipped too and Tricare covered it. Just waiting to schedule that appointment. I will try to update this as I can but since I have 2 kids now I don't have as much time to do so. Please continue to pray for Abe specifically: transition from IV medications (he is even on IV Tylenol, just Tylenol is in IV form now) to oral medications, might need to stock up on Dr. Pepper to help this. I know soda is terrible but if it helps him take his medication then it's better than an IV constantly hooked up. Tomorrow he will be able to sit up for the first time in 3 days, little to no pain (his incision is pretty big on is lower back, ouch), that he does okay with respite provider while I have to get the power wheelchair taken care of far from the hospital and daddy is working.

Selective Dorsal Rhizotomy

I last posted in October, wow. Guess having 2 boys keeps you super busy. Luke is a 1 years old now. He started walking on July 4th and July 14th he started climbing. Abe is 5 years old now. He starts kindergarten in September, is using a power wheelchair for his means of mobility and can pedal a bike.  He will be having surgery, selective dorsal rhizotomy this summer. The rhizotomy will help decrease abnormal muscle tone. His muscles are so tight from the CP that his hips are pulling out of socket and it is difficult for him to stand and walk. Abe is able to pull himself to a stand and take steps while holding onto little kid shopping carts or our wheelchair ramp. We ask for prayer as this will be our first time dealing with caring for 2 children during a major surgery.Here is a link about the information: ahttp://www.seattlechildrens.org/clinics-programs/neurosurgery/services/selective-dorsal-rhizotomy-reduce-spasticity/#whatis. The follow up PT is critical so 6 months to 1 year will be spent commuting to and from PT 3 x a week. We recently transitioned his therapy to CTU in Puyullup to better accommodate his post operative PT needs and space for his power wheelchair. We are not sure if I can continue MOPS, women's bible study and how OT and ST will be work out for Abe.Glenn retires from the Navy in October. He started working at Boeing this past week. We are still unsure of his schedule, either days or nights. I will update this as I can to keep everyone posted on how Abe does after surgery.

Luke Noah 3 months old

Time sure does fly epecially with a healthy newborn that you are able to do normal and typical daily activities with. Well not sure taking him along to all of Abe's appointments is considered normal or typical for most families but it is for us.  When Abe was 3 months old he was still in NICU and was not considered "full term yet" since he was born 3 1/2 months too early. I looked back at some blog posting from April 2009 and I briefly read that I finally noticed Abe's dimple, well nurse Sarah pointed it out to us. We finally noticed it because the ET tube was out and he was on CPAP.  I must say I never believed the every kid has a different personality theory but it is so true. Luke is an awesome sleeper but can't stand car rides especially the trip to church. He just screams loudly and cries like crazy. Abe has always loved car rides and to this day still does. Luke slept for 12 hours the other night and I did not wake him up to breast feed and I did not pump. Man was I in pain from the milk building up but I did not want to wake a sleeping baby. He looks so peaceful. He sleeps with is  hands above his head. Abe on the other hand is not a great sleeper but rarely screams or cries while on a car ride. I guess I would rather have a screaming baby while driving then in the middle of the night. Luke is growing like a weed. At his 2 month check he was 15 lbs 12 oz so almost 16lbs. He appears to be developing as expected,social smiles, flirts, puts both hands in this mouth and grabs and pulls my hair. Might be time for a haircut, my last one was August 2012. I know Luke understands what I am saying to him because he will cry and I was say do you need a diaper change and he will smile, laugh and move his eyes. It is so precious that he communicates with me. Another big difference is I let Luke go to the nursery at MOPS today. I did check on him once because I thought for sure he would want to eat but nope he was enjoying the grandma cuddles there. Abe is 31 lbs but still under weight  but is wearing size 4T to 5T. Tonight he said to us "Mommy I want some food to eat please". So proud that he is speaking in sentences. AWANA cubbies has been difficult the last 4 weeks. He just throws major fits there and does not want to participate until the kids are being picked up at the end. It is frustrating because Glenn and I are both volunteers with it. Last year he did pretty well but it was at a different church and a smaller group of kids. We switched churches in July a few weeks before Luke was born. The other church was over 40 minutes away so that is 80 minutes total of driving with 2 kids. The new church is 20 minutes away.He will do his verses and sing the songs so we know he is gaining some knowledge there. Abe is practicing maneuvering a power wheel chair and some days is more successful than other days. It does require a trip over the bridge to Tacoma so lots of gas and the bridge fee. Abe got his first buzz hair cut by daddy. I am still getting used to it. I miss his pretty hair but he is a boy. Glenn will be 40 next month and I am planning  a party in the tree house for him. Just hope it is not too cold., My mother in law Linda passed away a few weeks ago from cancer, diabetes and heart problems. I know that she is not suffering any longer but I am sad that she won't meet her grandsons until they go to heaven.  I will continue to periodically update this but most information and pictures are on facebook.

Abe is a big brother

This blog was originally created to update everyone about Abraham Goddard's status since you can't use cell phones in NICU and to maximize the time for mom and dad to update everyone in one sport. Abraham is a big brother now although Luke's birth weight far exceeded Abe's, he is still the big brother. Luke Noah was born at 39 weeks 4 days,July 22,2013 at 0832am 8lbs 8 oz, 21.3 cm by vacuum assisted VBAC without any medication or epidural. Both of my boys were born on a Monday. It was a full moon too apparently.  I came in dilated to 7-8cm and pushed for 4 hours without success. He had shoulder dsytonia for 50 seconds too but he finally made his way into the world. He had subgateal hemorrhage and we both were transferred to Madigan. It was very traumatic experience but I am thankful he made it to full term.I had grade 4 tearing too and had complications as a result. We were both discharged on day 3 but he was re-admitted to Naval on day 5 for jaundice, bili level was 17 and I had surgical repair of the tears in the OR due to complications. He stayed over night for jaundice therapy but is home now. We both seem to be better. He goes back today for weight check and bilirubin level. Other wise he is healthy, breastfeeding, pooping, peeing and sleeping. We won't know any long term effects of the hemorrhage until he gets older but we are hopeful he will be just fine. Please continue to pray for Luke's development and my recovery.I  was hoping and praying for a less traumatic experience this time around for healing but it is exactly what God had intended to happen. I did have some PTSD symptoms at Madigan, even thought I was being discharged on day 2 without Luke. I panicked thinking how am I am going to feed him since I have no breast pump on hand. I also thought how am I am going to get to him in the middle of the night. Although I did not have a c-section I had pain and pressure from the grade 4 tears and complications too.Thankfully we were discharged together. I have two handsome boys under my care now. The NICU nurses were awesome at Madigan but on the postpartum unit I received less than ideal care. Housekeeping did not even clean or mop the floor until day 3 when I asked and even then it was only the bathroom that was cleaned. Thanks to the furlough hospitals are providing substandard care that has already resulted in re-admission and an additional surgical procedures. In the long run it is costing hospitals more and might be difficult to maintain accreditation if visible body fluids are not even being cleaned up off the floor for 3 days and only because the patient requested it.

36 weeks

Can't believe I am already 36 weeks so 9 months pregnant. I have never been this pregnant before but everything seems fine. The diabetes is under control with diet and exercise. One provider said I could decrease checking it to twice a day but the provider I saw today was not on board with that and said to check 4x a day. He said some patients can't tolerate the pain of sticking themselves that often. It does not even phase me. It is not painful just inconvenient. I set a timer on my stop watch so I know when to check it. I have had to check it while waiting to make a turn off of my street or I have to wait to leave somewhere because it was almost time to check it. Also while I am waiting in line at a store or during church service.  However in no way is doing it causing me any pain. The weekly shots were not super painful either but annoying that I had to get up earlier than normal and unload Abe including his stroller. It did cause a little discomfort for awhile but nothing too bad expect when I had 2 shots in the thigh. That did interfere with daily activities like getting on the floor to pick Abe up or change his diaper. One shot I still had tenderness where it was given for about a week but it was tolerable, never stopped me from normal daily activities. I was so nervous and scared that my body was not made to carry to term but this week I will be considered term. What is interesting is my health insurance will  no longer cover the progesterone shots so I got pregnant just in time. I only required them week 16-36. I guess they would rather paid the 96K plus for NICU and the all the therapies and needs of special needs kids than cover the shots that can help prevent premature L and D. Early in pregnancy I was afraid to over do it so that I don't go into premature labor. I feel like it is battle between me and the medical providers. It seems so foreign for them for a mom to want to try for a VBAC. A repeat c-section is more convenient for them but the cost, recovery and risk are high for the mom. The doctor that does the c-section does not have to live with the pain. Last time I had absolutely no choice given transverse lay and emergency situation but this time around the baby is head down so there should be no reason for a c-section. With all the furloughs and the economy I am surprised that doctors are still pushing for repeat c-sections, epidurals and lot of medical interventions. It would save thousands of dollars if epidurals were not used as often and the cost of a surgical procedure is high since it requires medications, a surgeon, assistant, floating nurse, anesthesia, and with L and D a nurse for the baby, ect. Why can't a momma just have a natural birth the way God intended without all this fancy expensive medical technology? The strips for the blood glucose monitor is $65.00 for 50 strips and if my diabetes is controlled for the most part why does the provider insist on checking 4x daily? Since we are an active duty family we don't pay for it but someone does. I asked for nutrition consult at my very first nurse appointment but never got a referral for it. I wonder if the diabetes would have never developed if I knew more information about nutrition early on. I had tons of nausea and vomiting and still occasionally do but am so much better. All this might have been avoided if someone listened to what I said and wrote down on the intake papers. I am praying one particular provider that is pushing a repeat c-section is not on duty the day or night I go into labor. He wanted my membranes stripped next week at 37 weeks. I guess in medical school doctors are not taught to let the body do what it is intended to do. I measured big today but the provider did not bother to look up the growth ultrasound done at Naval hospital 2 weeks ago where he would have saw that Luke measured almost exactly to text book for 35 weeks gestation. I thought for sure a doctor would have gone over that with me today especially since the whole point of it was to check for size to see if a trial of labor would be appropriate. I don't trust the manual tape measurement of uterine height. I bet if 4 different providers did it they would all get different measurements. Unfortunately I don't trust this doctor one bit. Dr. Banks is no longer there. He seemed to listen and genuinely care about his patients and told me when he did my emergency c-section and at my pre-conception appointment he said based on my c-section incision I could try for a VBAC if everything was favorable with my next pregnancy. I was terrified to ever get pregnant again. I just wish planning for labor was not a battle between me and the doctors. Enough venting. I just want to say one last thing this is my body and my baby and no one not even someone with MD after their name is going to do anything to induce labor unless he or she can show me hard core evidence of maternal or fetal distress.

33 weeks

It has been a while since I updated my blog due to Abe's appointments, morning sickness and other life happenings. We are having another boy Luke Noah. I have no idea when he will be born but I am hoping for a drug free birth since the recovery period is shorter. I did develop the gestational diabetes which I knew with the progesterone shots was a risk. My blood sugars are typically under control unless I eat food high in carbohydrate and not adequate protein. My highest 2 hours after meals was 143 and fasting 103. I usually can account for what has caused the spikes. So thus far I don't require medications to control it, just diet and exercise. When it got to 143 I took at 1/2 hour walk and it went down to the 96.  I have been walking more which I was afraid to over do it early on for fear of miscarriage or premature labor. Abe and I went for a 1 hour walk today and it wore me out. I have been in twice thinking I was in premature labor at 23 and 24 weeks. At 32 weeks I slipped on my kitchen floor and since the nurse at the childbirth class said to notify if you fall down I called. I was advised to come in. Thankfully the blood work showed no signs of premature labor or a placenta tear, ect and the monitor showed no contractions and Luke's heart rate was strong. I got to leave the hospital. I figured I was fine but it was better to error on the caution side. I was going to do treatment for PTSD surrounding my prior delivery however since stress raises my blood sugar one doctor advised not to under go that kind of treatment right now. I am hoping my labor and delivery with Luke with heal the trauma. Most of you already know with Abe it happened so quick and was very traumatic. I only saw the top of his head and his eyes because I asked if he was definitely a boy and this quick look was not right away either but probably 10 minutes after I heard him cry. I finally saw him for the first time over 12 hours later at Madigan after a social worker and doctor pulled us aside to and told us that he probably would not survive due to extubation that occurred in flight which caused oxygen deprivation and possible brain injury.  I got to hold him in my arms for the first time 14 days after birth. One day in April when I left the counselor's office at Naval Hospital I looked at the window while waiting for the elevator and the fire truck, ambulance and the helicopter were out there. The first thoughts that went thru my mind were, I bet that is for a pregnant momma or baby, then I went to the L and D floor to visit with the nurses I know there and sure enough a baby was being wheeled out by the flight crew to get on the helicopter for transport. I did not shake or cry but I wondered is that baby also going to have the same degree of disability my Abe has, is the baby going to be okay?  I was terrified to ever get pregnant again but since I know several moms with special needs kids and/or prior preemies have successful deliveries and full term healthy babies I figured if I am going to do this I better do it before I turn 40. We stopped using our preferred method of birth control in late August and either late October, early November, I probably know the exact dates but that will be TMI for this blog, Luke was growing in my womb. Now I am almost 34 weeks and feel more confident that my body is capable of carrying a full term baby I am terrified of the delivery. I struggled since Abe was born that some how it's my fault that my body had him born so early but I also know God knows his whole story before I was even pregnant with him. I don't want my uterus to rupture but I don't want another c-section, the recovery period is too long and I have had 4 surgeries in 3 1/2 years and I really don't want another surgery.I had pain at my c-section site for several years.  I have heard 2 recent local stories of hemorrhage even with a scheduled c-section. I will be having a growth ultrasound between week 35-36 to check the size of the baby. I feel this is the doctor's ploy to convince me to repeat scheduled c-section.  I don't want to be induced, I don't want a c-section. I waited the 3 years, actually 3 1/2 years and it will be 4 1/2 years when I actually deliver. I need to over come this fear. I have read some Bradley books, plan to watch the Business of being Born (if Abe will let me), went to 1 child birth class, attending one for those who want to try labor after c-section and hired a doula. I hope for a healthy baby if that means c-section again I will just have to deal with it however I would rather a natural, drug free birth without complications for either me or baby.  My husband's MRI did not show evidence of a brain tumor. My mother in law does have cancer and so does my mother. My mother has stage 1 breast cancer and will be undergoing the radiation therapy, the intense short duration treatment. She had the balloon inserted today and will start treatment in the morning. Unfortunately she will have to drive herself to and from the radiation session since my siblings are not able to help.  Although she wants to and had planned to come to meet Luke she probably won't feel up to coming and so far has not purchased her plane ticket to visit. I am not sure if my mother in law has started any cancer treatment or is taking palliative measures. On other note Abraham loved the therapeutic riding lessons at Miracle Ranch, it was the best birthday present for him. We signed him up for summer session too.

Baby Goddard #2 is a

BOY. This is information for you non Face Book people. He had his back turned the entire ultrasound and never opened his hands or moved his right arm. Hands held tightly in a fist can be a sign of Trisomy 18 however he might have just been sleeping. His legs were long and extended out. In fact they measured bigger than 21 weeks gestation. Since they were not able to get a good look at his face, heart and are concerned about his hands a repeat ultrasound will take place in 4 weeks. This ultrasound will be 3D which gives an even bigger look than 2D. I am nervous about his tight hands, extended legs and his heart valves looked floppy to me. I do see an family practice doctor in a few weeks at OB clinic, (have no idea why I would be seeing family practice when I am high risk OB patient but oh well) so hopefully he or she can give me more detailed information about the ultrasound.My blood work showed 1 in 400 risk for chromosomal abnormalities so 399 healthy babies and 1 with a chromosomal defect. The blood work is not 100% accurate but even the ultrasound can not completely rule out problems. Only  when the baby is born can a problem be identified or even after age 1. Just prayers for healthy baby and that we come up with a name for a boy. We had a girl's name picked out but not a boy's.

Facing Fear

At church this week a verse about fear popped up on the screen. It brought tears to my eyes. Since I am 21 weeks now I know that I am getting into the more critical stage of my pregnancy. I have heard several moms says "he or she tried to come at 27, 28, 29 weeks,ect" but they were able to stop it until I was 32 or more weeks, ect". In my case they were not able to stop labor since my water broke, I was fully effaced and was dilated to 6cm on arrival that night around midnight after the big super bowl game. I had no idea I would deliver so early or be given a medically complex kid. I just told people my due date is May 5th and babies will come when they want to come. I thought Abraham would be born late since most first time moms have babies past the due date. I thought maybe Mother's Day actually not Ground Hogs Day in February. I also remember telling co-workers well if my baby is special needs I have been a nurse so I can deal with it. I really had no clue that I would deliver at 6 1/2 months pregnant, I had unpacking to do, reestablishing Washington friendships and adjusting back to life in Washington. I had no idea that I actually would have a special needs kid.  People say your thoughts guide what happens in your life. To some extent I believe that but really God is in control completely regardless of your thoughts are.  I feel that my thoughts "I can deal with a special needs kid, I have a been a pediatric nurse for x number of years" and "babies will come when they want to" have nothing to do with what God knew would happen in my life.Rather he probably planted these thoughts to prepare me for what was to come. After all there is a verse that talks about "... You were knitted in your mother's womb...". God knows your entire story before your mother is even pregnant with you so how can my thoughts have controlled what happened 4 years ago? This pregnancy the doctors don't really know if the progesterone shots will be effective in preventing premature L & D, they have no idea if my body can carry to term. They just monitor the pregnancy and take it week by week. The further along I get, preferably after 34 weeks gestation the less "high risk" I will be unless other complications arise like high blood pressure or diabetes,ect. The fear I have of going the same situation is real because it is possible especially since they don't have a absolute 100% rationale for the premature L & D. I do know that mother's of micro preemies would probably be have the same fears I have because they to have been there done that. Interesting that this week at bible study and MOPS emotions were discussed. When a parent is upset or angry and a kid asks "what's wrong mommy" you should not lie to your kids but rather tell them mommy is having a hard day, is sad about something and it has nothing to do with you, God will help me. At MOPS they discussed not dismissing negative feelings such as anger or fear but rather acknowledge them. If your child is scared of monsters in the room and won't stay in bed don't just tell the child, there are no monsters in the house, now go back to bed and don't come out again or you will be punished. The child has true feelings, even though, negative, they are real feelings and by being disappointing in the negative emotion you are not teaching your child to work through emotions which can lead to confusion and self esteem issues. They begin questioning maybe I really am not scared and get very confused about emotions. Obviously you don't want your angry child to be violent and hit and kick people but you do want to them to address the emotion rather than suppress. A child that never learns to deal with negative emotions may become an adult that stuffs the emotions then  blows up with anger or not know how to deal with other people or their emotions. I have fear about the delivery of this baby and the length of the pregnancy, if I will be the 1 of the 399 with a baby that has Down's Syndrome (based on my blood work my risk is that of a 35 year old, 1 in 400 risk of Down's Syndrome) these are real emotions. I have obviously reasons for this fear, my prior personal experience with a completely unexpected 2nd trimester delivery at a hospital not equipped to deal with a 26 weeker, 2.2 lbs baby. It is my reality. Abraham is doing amazing but on arrival to Madigan he was not doing so well, we received the phone call about continuing CPR or not and  9 days old we had the discussion about continuing life support or not. Healthy full term babies are learning to breast feed or drink from a bottle and the family is adjusting to a human being that they completely have to provide for. Our experience was different we were facing decisions and signing paper work to consent for flight to Madigan, blood transfusions, intubation, CPR, IV fluids, TPN/lipids,central lines, surgeries and transfers to 2 other hospitals. We are thankful for Abraham and all he has over came and accomplished. I just want people to understand my fear about this pregnancy. No one can ever truly know what exactly it was like, even other families with micro preemies. I will never understand their experiences either but I can relate. It is possible God does want me to care for 2 special needs kids. I have no idea why and I hope not but you never know. Next week we find out of the baby is a boy or a girl. Abraham wants a baby sister and we have a girl's name picked out but we will know for sure next week.

4 Years old

It has been 2 months since I posted anything on the blog, wow. I started a Christmas letter for 2012 but never copied to post here. I still might but Christmas was a few months ago now, lol. Guess morning sickness has got the best of me. I had nausea and vomiting the whole pregnancy with Abe but not daily, only occasionally like if I smelled cigarette smoke or gross bathrooms. Cigarette smoke smell still sets me off big time, guess it is how the body makes sure no toxins get in. Even if I smell it on people's clothing, yuck.  Abe is 4 years old and had a great Cars birthday party. It was pretty noisy here but he loved it.Thanks to all those that came and donated towards therapeutic riding sessions at Miracle Ranch. Orthopedic surgery and his general pediatrician cleared him for it. I just need to finish the paperwork and find about enrolling him for this summer. This is great gift for him and I know he will love it. It might be daddy there with him since I will be very pregnant by summer time. This will give some daddy-son time before the new baby comes. Abe is continuing to increase his speech, motor and social skills. He is banging his head on the floor less often and is communicating much better than he has in the past. He even signs along to K-Love in the van.  I am almost 17 weeks pregnant. This pregnancy has been a little different, much more nausea, vomiting and headaches but without the bleeding or the constant feeling that I have a bladder infection. I have craved vanilla cupcakes, cottage cheese, tacos and frozen blueberries. We have the anatomy scan mid March so we won't know if boy or girl until then. I know some pregnant women find out early however I was told between week 19-22 to ensure accuracy. We have a girl's name picked out but not a boy's name yet. Our 7th wedding anniversary is Valentine's Day. We don't have big plans since it is Valentine's Day we never go out to a restaurant, might just make steaks at home. Please pray for Glenn, he has ringing in his ear and will have a CT scan on Valentine's Day to find out what the cause could possibly be. I know he worked in the engine room on subs for 14 consecutive years which if you know anything about engine rooms it is very, very loud even with ear protection on. The CT scan is to rule out a tumor. He seems pretty healthy to me other than being tired often and having a low vitamin D level, but who in the Pacific North West has a normal vitamin D level any ways? I heard a country song today that made me cry. It was called I am driving your truck, not sure if it is about a solider that lost a fellow solider but I was bawling when I heard it. It made me think that everyone eventually dies and sometimes it is very early in life as result of war, accidents and medical conditions. When I got home Glenn told me about the possible tumor. I am very scared but all I can do is pray and hope for the best. He is not even 40 years old yet and has another child on the way. I am hoping it is something benign that requires very little medical intervention if any.

1st ultrasound

I had an appointment with the nurse a few weeks ago to establish care. Since I am considered a high risk pregnancy I am being followed by complicated OB so centering care (group education appointments where they call each women out individually for weighing, ect) is out of the question for me. In addition I will be followed by a doctor rather than a nurse midwife. I know some moms are in a situation have care by a midwife, very little medical intervention and do home births. I admire that, my own mother was born at home but given my prior 26 week gestation delivery this is not an option for me. In fact I would rather deliver at a hospital that is equipped to deal with newborns that require high acuity care than deliver at home without the trained medical professionals. I was told that any pregnant women high risk or not should not lift anything over 25 lbs. My doctor today said that in some countries pregnant women carry their other children in baby carriers while working and there has been no link between carrying another kid while pregnant and premature labor or delivery. He did however say to not over exert myself. This is the same doctor that delivered Abe so he knew some of medical conditions and inquired if he will ever walk. Abe sure has came a long way. Based on the ultrasound today I am only 7 weeks 6 days instead of 8 weeks 4 days but my due date is still July 25th. I did not hear the heart beat but the doctor said he saw it and confirmed there is definitely a baby in there and only one so no twins. We decided that we will do the full work up for birth defects, well the extra ultrasounds and blood tests not the amniocentesis since the risk of labor and infection are high. I know that we may get a false positive since I am 38 and I will worry myself to death. With Abe we never bothered with this however given our prior history of having a medically fragile 2 lb baby but we want to know so that proper referrals to professionals and/or if a hospital set up with a high acuity NICU will be required. This additional ultrasound and blood work is only offered at Madigan. Childbirth and pregnancy are a natural part of life and have been for thousands of years however it has not always been an easy task or normal thing for every single mother out there. I mentioned the nausea and vomiting and my doctor did not recommend ginger chews so he prescribed vitamin B6 and Zofran. I will require more frequent appointments than the average course of pregnancy. Starting at week 16-36 I will require progesterone shots to prevent premature labor and delivery. I know at least one of my friends that had progesterone shots and she delivered a healthy baby girl that was full term, her first full term baby too,all her other 4 kids were premature but healthy kids. She was not happy with the weight gain but is thankful for no NICU stay or having to take a 2 month old back to the hospital for inpatient care. There are no guarantees this baby will be stay inside the womb until full term. There is a huge difference in development between a 34 weeker and a 26 weeker. The progesterone shots require weekly visits but with the nurse only. I asked if there is potential for bed rest and this would only happen if I had contractions or signs of premature labor. Sure hope we have a girl growing because Abe already calls her by her nick name but if we have a boy that is wonderful too. We would need to reteach a name to him. He gives the baby high fives and kisses. It is so cute. He will make a great big brother to either a sister or a brother.

July 2013

July 2013,some might think well what does that mean especially if you are not a Facebook friend or you don't have a FB account. Abraham will have a sibling July 2013 or even where she or he wants to come into the world. I am really hoping to make it 2 weeks before due date or after. I debated sharing the news so early, I am only 4 weeks 5 days along. I kept waking up for the last few days thinking I need to share the news so more people know to pray. The feeling to share the news just would not go away. For those that know me well I am not a morning person at all however I am waking up super early just full of energy and I just started the vitamin D supplement today. I occasionally take it if I remember however it is important to take daily because Vitamin D has been associated with less pregnancy complications including gestational diabetes, premature labor, preeclampsia. Here is the article http://www.webmd.com/baby/news/20100504/high-doses-of-vitamin-d-may-cut-pregnancy-risk. My doctor did not prescribe 4000 IU, only 1,000 IU.   I did not even hear about taking extra vitamin D with my prior pregnancy but I lived in sunny San Diego too. I know to limit or avoid caffeine because it can decrease blood flow to the uterus however I know some moms that had caffeine daily and still had very large babies, 10 lbs of pure newborn. I also know that ingesting high levels of vitamin A can cause birth defects. Green tea interferes with folic acid absorption. I can spend countless hours in worry about oh no I had a lot of caffeine (soda and chocolate) the last 2 weeks, I had green and Chamomile tea, I took Abe's vitamins instead of my prenatal because they taste good. Interesting the days I ate a lot of chocolate covered almonds and drank the chamomile tea were the days I had the most nausea.  The alternative to this would be to I live life, continue to celebrate our miracle baby's (Abe) accomplishments (he is doing amazing), enjoy what will probably be my last pregnancy since I am 38, get my house organized for a new baby and know that God's plan is his plan and I can't change what he already has in store for my family. Abe visited a family with a  2 boys a 3 year and a 7 month old and Glenn saw that Abe was very nice to the 7 month old. I have witness this as well. He even raises the tone of his voice when he talks to him just like an older child or an adult would. Please pray for us because if you knew me right after Abe was born I said I wanted more kids but I would NEVER get pregnant ever again because I did not want to put myself in a position to see a tiny newborn face life and death. I found some peace in knowing a few moms that have a special needs kid and they all had healthy, typical kids for their next kid. I love Abe with all my heart and I am so thankful he is still here and learning, growing and exceeding any exceptions that were placed upon him when he was just 9 days old. Please continue to pray for a healthy, uneventful, boring, normal, typical full term pregnancy. When I hear moms say how uncomfortable they are when 9 months pregnant I have no clue what that feels like but am desperately wanting to experience it too.

Take a stand

Abraham is growing and changing so much. He is definitely not the little 2 lb fragile baby we could barely touch during NICU life. He is talking, eating, and drinking more than ever. He also has been pulling himself to a standing position a lot. He even tries to climb into the bath tub without assistance. This boy wants to walk however in order to be able to walk he needs a gait trainer or a walker to help him. He gets frustrated in his stander because his feet are strapped down. The stander can move but my wheelchair wheels only. He is in an upright position like his peers. A few weeks a go at church some little girls were running around next to him. He did a push up and tried very hard to get up and quickly went back to the floor and verbalized "no walk". I broke down in tears because it broke my heart that he desperately wants to walk but can not due to the brain injury.  He has the determination he just needs to the practice and tools so he is successful. He is currently on a Bacloefen 10mg. I really did not want him on medication but his muscles are tight without it despite PT, pool therapy and stretching. He saw orthopedic surgery last week and his hip x-rays are abnormal but not so bad that he needs to be rushed into surgery. He will be fitted for new AFOs in a few weeks. MRI for VP shunt showed no concerns and neurosurgery does not need to see him again for one year. Abe was tested and diagnosed with autism spectrum disorder. (ASD).  I always thought no that is one diagnosis he does not have but after talking to the doctor and seeing the characteristics it is disheartening. We had him tested because I get asked a lot in the community and by other parents with special needs kids if he has ASD. This qualifies him for 5 days a week of ABA therapy. We are hopeful that ABA therapy will assist with the head banging, spiting and throwing and obsessions with  objects. He gets obsessed with rocks, cars, paper towel rolls, balls and pencils. He tries to carry as many as he can in his hands. Abe had an Inspiration Through Art photo session with Julie Ross with Abundant Life Photography.  The pictures are amazing. I will post the link to share. http://abundantlife.zenfolio.com/abe. The password to look at the pictures is "hero"For now I need to finish my ballot since it is due tomorrow.

Fall Changes 2012

Wow I had no idea it would be difficult to log onto my own blog but I finally figured it out. Fall causes many changes: outside temperature is cooler, colors of the leaves, the air, the produce you can find in the grocery store and activities. We have some changes in our lives. We have decided to try for another baby. Abe loves kids and we had always planned to have more than one. However given the circumstances at Abe's birth we took every precaution to never get pregnant ever again. We are both 38 so we decided if it going to happen at all it would be better prior to the age of 40. I stopped taking the daily antibiotic that urology put me on just so I am not on any medications expect prenatal vitamins, vitamin D3 and cranactin if I have bladder infection issues. Not sure when or if it will happen but I have also decreased the amount of Coke and Dr. Pepper I drink. I have not completely eliminated it but I do have days without it at all. Abe is currently sick but is still eating and drinking so he probably won't require an inpatient stay. He had had his Inspiration Through Art Photo session and we have a picture of him on his tricycle with a red cape. Thank you Julie Ross for doing this for our family. When I see that picture I think about how much inspiration Abe has been for all of us. He was fighting for his life right from the beginning but now throws "normal" 2 year old temper tantrums. He is speaking more, learning to potty train, riding his tricycle and pulling himself to a stand. He started AWANA cubbies this year. His favorite part is the play time with the other kids.  Professionals involved in his life see a very determined little boy that does not let any thing stop him. His favorite food right now is tortillas with cheese with ground beef or chicken. He calls them "hot tias" He is out growing his clothes including his PJs. He will ask for a clean diaper. All he is doing just blows me away. I remember looking at the brain scans, hearing what the neurologist told us, seeing him hooked up to 16 plus IVs I thought for sure he would not be aware of world. I was wrong and so was that doctor. I am so thankful that I did not pull life support because so many times I felt it was the right thing to do based on my medical knowledge and seeing what this tiny 2lbs child went thru. If we do conceive again we will need a lot of prayer. I really don't want to see a NICU ever again expect from the outside to say hello to the staff. I will continue to update monthly or other month.

The B-I-B-L-E and Freedom

Abe continues to amazes us daily. Over the last month he has said and done wonderful things. He played with a toy he received from the Ready for Kindergarten program with focus and used his fine motor skills to put the blocks correctly on the appropriate color plus he identified the shape of each piece. I was impressed because he usually just throws it. ABA therapy had helped him a lot with his behavioral issues one of which is throwing toys and banging his head. I am sadden to say that Tricare will no longer pay for ABA therapy under the ECHO program unless the child has an autism diagnosis. We have seen real progress and have learned from our ABA therapist beneficial educational and behavioral skills that we have not learned from OT, PT, ST, teacher for the vision impaired, special ed teacher or any other provider that has worked with Abe. I will be inquiring how to fight this because why would a medically complex, brain injury children not need ABA therapy? I also plan to get him tested for autism because I have had multiple people ask me if he has autism. I know adult stroke victims sometimes have personality changes after they suffer a stroke, some become violent due to expressive communication difficulties. I can imagine that behavioral training can assist with this even for an adult. However a child's brain is still developing and changing so why did a Federal judge in California make a decision to take this service away from special need children of active duty military? I guess my husband and all other active duty members risking their life so we all have daily freedom is just not enough for our special needs children to get to the therapies he needs in order to maximum their potential.  What is the incentive for people even to join the military then? I also know some retired military that gave 20 years of their and now are struggling to find jobs, pay for their homes and food. Some are losing their homes. This also makes me sad since those people risked their lives, worked weekends, holidays, shifts that last more 24 hours, ect and now they can't provide for their families. There is a country song that talks about the sacrifices our military makes for our freedom. When I first started writing this it was about the Bible and Abe's accomplishments.One last fact about the prior topic if it was not for our military fighting for American years ago we would not currently have the freedom to read the Bible. Last night while I was doing the dishes he said "Bible", "read Bible" while opening the little Bible the Gideon Foundation gave him at the county fair. After I finished the dishes I picked him up to carry him to his room for a diaper change, he still had the Bible in his hands. While changing his diaper he said "Bible, book of Jesus" without any prompting. Another amazing thing he is doing, he pulls himself to a standing position on occasion. Tonight he went to the refrigerator and pulled himself up a standing position while asking for "mac cheese and chocolate milk". We gave him some chocolate milk to fatten him up so now he thinks all cow's milk is chocolate milk. He is determined to stand and walk but much like a stroke victim he has right sided weakness and balance issues. I wonder if there is any medical treatment that re-trains damaged areas of the brain to take over these functions. At an appointment with his new pediatrician he had gained 3 lbs according to the scale. He did not fuss so much when the core men did this vital signs. He is growing up so quickly. It is difficult to imagine what life would be like if I did have life support stopped in the NICU. He has far exceeded the expectations that we were told when he was only 9 days old. I honestly thought he would be unaware of his surroundings and have a different quality of life. His quality of life is different than typical 3 year old boys but he still likes to explore by crawling instead of walking, play with cars, get dirty, wiping his dirty hands on his pants and he tries to jump off the side of our coach. Abe also has started to pretend play. Currently he has a bowl from the NICU, (one we put his first bath water in, yes it has been cleaned), he is "making, cooking" "mac cheese". I will continue to post at least monthly. Our September is pretty busy, some appointments in Seattle, base ball game, Great Wolf Lodge, zoo plus Abe starts school. So glad some of the calender is not all appointments or therapies but some fun stuff too.

Mr. Strong Will

We knew that Abe had a strong will because he beat the odds from his first day of life. I remember Dr. Long at Madigan calling me and asking if CPR should be continued because and she teared up as she said "he is fighting very hard to not be with us". We said continued and sure enough "Mr. Strong Will" was still fighting to be here on earth when we arrived. We also remember neurology informing us when Abraham was 9 days old that he would be in a vegetative state if he survived at all. We thought about pulling life support so he would have a good quality of life. Well he beat that odd as well. One of the first signs of his strong will was pointed out to me by Sherry Copper, a pastor's wife, that was also staying at the Fisher House. She noticed he was using his other hand to remove the sock so he could pull out his NG tube. That strong will has progressed to him verbalizing "cookie" when we leave PT, OT or ST, since daddy introduced him to the idea that Central Market gives free cookies to kids. Just this past week when we arrived there for his cookie and a few other items he said "no chair" referring to his wheelchair that I had already unpacked, so I offered him to go in a shopping cart. He said "no chair" and "no cart". It became a power struggle so put him back in his car seat and said "fine we are leaving". However I needed something from Central Market so I asked again "chair or cart" He continued to say "no chair" "no cart". I finally decided that I would carry him to the outdoor dinning area while pushing his wheelchair so we could have the discussion in a safer place than the parking lot. I was persistent and firm but gentle and nice. I told him your only 2 options are "chair or cart" what do you want. He finally calmed down and let me put him in the wheelchair and since he decided to behave once inside he got his free cookie. Some days I am not sure how to handle a strong willed kid. I will need to ask my mother if I was a strong willed kid myself. I think I was. I remember kicking walls, crying and screaming as a toddler and preschooler. Guess it is pay back time. I have a book reserved at the library, "Bringing up Boys" that another mom suggested to me. Any advice for dealing with a strong willed developmentally delayed boy?  Some mornings if he is awake before I shower I tell him I am going to take a shower and he says "no shower, no shower, no shower ...". Then he bangs his head on the bathroom floor or shuts my bedroom door and bangs his head there. Abraham's strong will is both a blessing and difficult. He would not be sitting next to me right now and doing amazing if he did not have a strong will. Not sure how potty training will go. He has the added difficult of not being able to stand or walk. His potty seat should be in soon. We requested a different one since the one we went to pick up was scratched up. I will attempt to update this at least monthly or when ever he has has another amazing mile stone

BIke

Abe will be getting his first bike in the morning,an early Christmas gift. An OT has modified a regular tricycle so he can sit on it and his feet will be fastening to the pedals. We are so excited and he will ask for it every day. At school he asks to ride the bike there. We already have a helmet for him. He has enjoyed riding in a toddler seat attached to Glenn's bike, however I bet he will enjoy riding his own.  Hopefully summer will actually happen in Washington. It still gets in the 30's at night here. His last day of school was today until September. He has enjoyed riding the bus to school and gets excited when he hears and sees the bus come and pick him up. We might continue the bus however I still have reservations about how loose the car seats are attached to the seat. I was taught the seat should barely move at all. These ones move a lot and through out the day multiple kids get in and out of them. He will have PT and OT for a few weeks at school during the summer however his teacher felt that he did not need the classroom instruction. She anticipates him to continue to progress even without school for the next several months. He will be starting ABA therapy with a new provider and company. We just had too many scheduling difficulties with the other company plus I sent several emails and left voice mails and no response back other than "I am rearranging my schedule". I don't have time to send multiple emails and make phone calls just to schedule an appointment. I wasted so much time with this. Hoping for a fresh start and for behavior changes with the new ABA therapist. If you don't know what ABA is just Google it. It is typically used for children with autism however kids with other developmental delays and or brain injury have benefited from it. I plan to have Abe tested for autism since people always ask me if he is autistic. He sees neurodevelopment next week. I am currently sick with a cold but Abe is fine so far. Just hoping not to get whooping cough since Washington has the highest incidence in the nation. Abe, Glenn and I have all been immunized for pertussis, AKA whooping cough, so hopefully we won't get it. Abe is older and stronger now too so an insult like pertussis won't knock him down as hard although it is fatal especially for the very young. Abe has increased his vocabulary big time, he even says "bless you" when someone sneezes, he asks to pray and says amen.  He must listen to our prayers because when we asked him to pray he said "house go, go, go". I interpreter this as "house sell". Our Bremerton house is still on the market for sell. Thankfully we are still active duty or not sure how we could pay 2 house payments every month plus utilities. In addition he will ask for "help" occasionally rather than cry. This past weekend I tried to rest since I am sick and he would go to the door and ask daddy to help him open it so he could get to me. I guess he wanted to comfort me. Over Memorial Day weekend we went to the Island Lake military appreciate day and Abe actually enjoyed the bounce house (with me in there with him). He used to be terrified of them. We are looking forward to many summer activities including a visit from his aunt, uncle and cousin next week. I will continue to update as he grows and makes progress.

Due date May 5th

 Today is the 3rd anniversary of my official due date for Abe.  I am sure most moms forget what their "due dates" were but rather when they went into labor and the whole birth process and how much their child has grown. I think the date May 5th stands out to me for several reasons. The first one is his birthday is in February and not May since he was born at 26 weeks gestation. I craved Mexican food a lot while pregnant with him which is significant for a due date of May 5th since it is also Cinco de Mayo. Three years ago prior to Abe's extremely premature birth I thought wow May would be spent celebrating Nurse's Day, Mother's Day, my birthday and Abe's birthday however one of those birthdays is celebrated 3 and 1/2 months prior. I listened to a friend speak today at my church about special needs children in foreign countries that are placed in orphanages and not given early interventions.  It broke my heart my also made me realize that God knew what he was doing when he picked Glenn and I to parent Abe. I thought to myself wow 3 years ago, May 21 or 22 we brought home an 8 lbs, he gained 6 lbs while in NICU, medically fragile baby who was on NG tube feedings, oxygen, monitor who was supposed to be in a vegetative state is sitting in a chair that an OT modified while eating crunchy veggie sticks. He would not be where he is without all the interventions and love that he receives. He recently can say 3 words together while motioning, "momma", "sit". He also will ask for "cake", "cake", even for breakfast. He crawled all the way down our street and wanted to keep going but I stopped him since the end of the road is a busy road. He was super mad because he knew exactly what he wanted to do. We are working on a picture exchange book with real pictures since kids with CVI see them better than drawings.  He has been enjoying taking bubble baths and can even sit in the tub on his rear end with leg extended out without much assistance while he plays with bath tub toys we got a the Ready for Kindergarten program. He knows a cow says "moo, moo" now. I recently went to the Infant and Early Childhood Conference in Tacoma with a parent scholarship. I was able to attend for 3 days thanks to the respite we receive and that Glenn is on shore duty. I discovered that I need to do more normal learning stuff with Abe like teaching him how to make play dough and let him actually feel and stir it and other life skills like washing his face. The idea of rain pants so he can participate during recess time was brought up as well. Some days the play ground is too wet and cold for him to get down on the ground and play with the other kids. I am trying to find some inexpensive rain pants for him. We are working with ABA for his head banging and throwing behaviors. We are so impressed with Abe's progress. and we pray that he will continue to grow and be more verbal so the head banging behaviors will decrease. Oh another note my kidney stone is gone and next week I will discuss with my doctor all my lab results and hopefully figure out why I form them. It is so nice to not have to deal with the pain and urinary troubles the stone gave me. I am still on daily antibiotics though. Our Bremerton house is still on the market. We are praying it sells quickly. I will try to up date this blog monthly but some months we are just super busy.